So about a month or so ago i had an assessment to go too, im on ESA (employment support allowance) So every so often you do have to go and have an assessment to see if anything has changed and where you should be on the payment scale. I mentioned about this assessment in a therapy diaries at the time, i was surprised because it was barely a year ago that i had my last assessment, when i was moved onto the highest tier of support, the support group were i got the highest tier of pay and couldn’t be made to do anything related to going back to work.
I have to admit that while a bit worried, i wasn’t overly worried that i was going to be moved, im worse than i was! plus combined with the fact that i might have narcolepsy and randomly pass out for sometimes hours? i thought i would be alright.
But then 2 weeks ago i got a letter, i call them the “brown envelopes of doom”, letters about anything benefit related are almost always in a brown envelope, over the years ive now come to fear anything in a brown envelope! The letter gave me an appointment on Friday the 14th of December, to meet my “work coach” at the job centre. I swear my stomach dropped, i knew what this meant, i had been dropped a tier, it didn’t tell me this however it just said that i must go see this work coach, or my money would be stopped, great. My money went in that night, and i was missing £25, odd….the tier below support group is £100 less, so i should of been missing £50 (you get the money every 2 weeks) But i couldn’t find out why, so i just had to wait.
On that Friday i got my answer in the form of another brown envelope of doom, telling me that i had in fact been dropped from the support group down onto the work related activity group. Which meant i was in fact loosing £100 a month, and would have to go see the work coach regularly or of course they would remove my money.
So i saw the work coach last Friday (im writing this on the Monday after) and it actually went really well. She was basically very surprised i had been dropped down a tier, her face basically had “i have no idea why you are here” written all over her face. She suggested i contest the change, which i do plan too, she also suggested that i apply for pip (personal independence payment) which i will be doing. She was very nice, and it was reassuring to hear that even she thought it was a stupid move.
This meant because the appointment last week was on a Friday i had to get out 2 days in a row. This was terrifying for me, not something i felt ready for at all! But there wasn’t much i could do about it, i didn’t want to miss another therapy appointment. And even though it was tough i did manage both days, even if i got 7 hours sleep across the two! I even managed to get out today too, though i really felt like it was impossible i did make it.
I am surprising myself at the moment, my drive is very strong even if i really dont feel like i can do anything most days! Im even feeling Christmassy for the first time in years, of course it brings a lot of anxiety, but im actually looking forward to Christmas for the first time in many years.
Therapy is going well, though i know now that my sessions will end in February and im already worried about keeping this up without therapy to help. Im crossing my fingers and willing myself to be able to do this without therapy, because the last thing i want is to fall back again.
All in all im doing well, im exhausted and my anxiety is regularly getting the best of me still but regardless im doing miles better than i was, so thats a win in my eyes.
I still do hate how much ive had to let things slip, like the blog for example but i havent had the time to write! Im hoping i can find myself a better routine come next year, and maybe ill be able to post more! I hope your all doing well, if you ever do wonder were i am have a look at my instagram cat.titcomb, i tend to be most active there!